June 8, 2023


Food loaded for bear

Dominic Update 5.0 - Brown Eyed Baker

Dominic Update 5.0 – Brown Eyed Baker

Joyful Oct, mates!

I hope you have all had a fantastic start to fall and are enjoying the cooler temperatures and gorgeous tumble days.

I’m popping in currently with a new Dominic update. Thank you all so significantly for your emails, the playing cards and items that you’ve despatched, and all of the prayers you’ve presented up our family members appreciates it all so extremely substantially ❤️

The Newest Remedies and Scans

After Labor Working day, Dominic had his 2nd spherical of immunotherapy cure, followed up by a new established of scans and a bone marrow biopsy in mid-September.

We got incredibly encouraging news… the scan showed that 50% of the most cancers has cleared, which is the most significant go of the needle that we’ve found so considerably.

The whole-system radioactive scan accomplished for neuroblastoma is identified as an MIBG scan and it is specified a “Curie score” – 10 segments of the human body are scored to 3, dependent on how significantly most cancers is current, which usually means the best score it can exhibit is 30. In Might, Dominic’s rating was 27 right after surgical procedure and prior to beginning immunotherapy, his rating was 26. Right after the second round of immunotherapy, this most modern scan confirmed a score of 13.

His bone marrow biopsy confirmed what the medical professional named “just a trace” of neuroblastoma cells, a reduction from the past 5 to 10%.

We pray that the immunotherapy solutions go on to be this productive and that he will quickly be fully cleared of the cancer that continues to be.

Future Up…

Dominic will have his 3rd round of immunotherapy the week just after up coming, and then the fourth round about a month after that, followed by another established of scans.

Immunotherapy, as opposed to chemotherapy, does not lead to white counts, platelets, or hemoglobin to fall, so we don’t have to fret about 2 times-weekly lab work or transfusions. We just want to go into clinic as soon as a week to have his central line dressing changed.

In the Meantime…

Dominic begun kindergarten previous 7 days! It has designed my coronary heart so pleased to see him making the most of standard 5-yr-outdated life, showing us the papers he’s worked on, and chatting about the minimal things that have occurred during the working day.

Soon after expending the last 6 months heading back and forth from hospitals, inpatient stays for chemotherapy, medical procedures, countless clinic visits, transfusions, radiation, and anything in concerning, acquiring some normalcy in each day daily life has been this sort of a blessing for him.

AND he turns 6 this week! 🎉

Coming Up…

You may have viewed a pair of new email messages from me this last 7 days! Thank you so substantially for the brilliant opinions!

I’m bit by bit commencing to get back into the swing of issues and with a somewhat extra predictable plan at dwelling, I’m hoping to deliver back Friday Factors and ship you mouth watering recipes on a semi-regular basis all over again. Keep tuned 😋